Wednesday, May 16, 2012

Mother's Day Snob

Hayden - We've increased Hayden's medication dose and he seems to be handling it so much better this time than the last time.   Gee I wonder why?  Could it because I decided to increase his meds the same time he got a new little sister?  Not sure exactly what I was thinking.  Even supermom's have duh moments.  I decided to give it another shot since the shock of not being an only child has kind of wore off.  I am happy to say he's doing great!  He is talking non stop.  I can't understand a lot of it but we are getting there.  He is more loving and affectionate.  I mean I am getting random hugs for no reason.  NO REASON!!  He is asking me to lay down with him at night for a little while.  He is talking to other kids at school and still telling me about his day!  He is playing with his sister...really trying to play.  It's been amazing to see these changes.  Keep them coming.

Cupcake -  She is fitting into our family very nicely.  She and Hayden are getting along most of the time.  She is a typical little sister who think her big brother hung the moon and wants to do everything he does.  You probably could guess how this drives Hayden a little nuts every once in awhile.  So he'll feel the need to tell me to put her to bed or put her outside or the most recent...take her to the doctor.  Over all they are getting along great.  That 5% chance of us not keeping her paralyzes me sometimes.  My heart races and it's complete dread.  I don't know what we'll do if that happens.  She feels so much like ours already and it's been less than two months.  I have to keep reminding myself that she is not ours officially yet.  She has bulldozed (well clumsily fallen) herself into our hearts so deep that even the thought of not keeping her makes me sick.  I try not to think about it, but it's there just in the back of my mind.  Every time I fill out my reports or take her to an appointment or have to tell someone she is our foster daughter...Every time I have to send in a vacation request and ask permission before I do something or send in a back ground check on a friend or family member so they can babysit, I am reminded that she is not yet a Makris.  Every time a friend asks if it ok to post a picture or I have to ask a friend to take down a picture because we just can't do that, I am reminded.  I cannot wait for the day they tell us she is ours and thaat we can adopt her.  I cannot wait for the day I can post pictures on this blog or on FB of her face. We are throwing a BIG PARTY people.  Big. Huge. Party. 

This past weekend was mother's day.  I am not ashamed to admit I am a mother's day snob.  You will never hear these words come out of my mouth "oh I don't need anything for mother's day" or "don't waist your money on flowers".  Because lets be honest woman really don't mean that when they say it.  It's like setting your husband up to fail.  We all as mother's want to be appreciated in some way.  That's what I think mother's day is all about.  I think it's the perfect time for a husband to not just talk about how much he appreciates his wife as a mother, but to show her.  I know how lucky I am that Mike get's this!  I am always spoiled on mother's day..ALWAYS.  Not only do I have the guy that tells me how much he appreciates me as a mom (not just on mother's day) but he shows me.   I don't think you have to spend a ton of money to make is special either...I'm not that bad.  I love flowers!  I love the way they look on my table.  I love the way they make my kitchen smell.  I think it's because I can't grow "real" flowers that have roots.  I know the fresh cut ones are going to die not matter what and I really have no control over that, so there is no guilt when I throw them away.  This year Mike got me a dozen roses that as he handed them to me he said "listen I have no idea how these are going to do they were on clearance at the grocery store and I only paid $9 for them".  They were kind of sad looking when I cut them and put them in water.  The next day they were the most beautiful and perfect roses I have ever seen and they still look gorgeous.  Some of the best flowers he has given me came from somewhere other than a florist.  So does this mother's day confession make me a snob?  Probably but I just don't care.  I worked very hard to be a mommy the first time and I've been through a lot to be a mommy the second time.  For many years I sat and watched mother's day come and tried really hard to not be jealous of all the mom's around me celebrating.  While I continued to struggle to become a mommy.  I'll admit that was a really rough time in my life.  I know there are so many woman out there who had a much harder time than I did.  There are many more woman out there who are still not able to be a mommy.  My heart breaks for those woman and I always take a moment to say a prayer for those ladies on mother's day.  I've been there I know what a torment mother's day can be.  I am proud of my title as mom.  I cherish it and all that it means.  I look my babies in the eyes and thank God for them.  I am one blessed momma!

I hope you all had a wonderful momma's day and that you were appreciated.   I am surrounded every day by some really amazing mommies.

Love,
Tina

Thursday, April 26, 2012

Gentlemen Start Your Engines!!!

The talk of taking Hayden to a NASCAR race really got serious when we went to Las Vegas and toured the track.  We had never seen Hayden so excited about anything.  From the minute we pulled into the track from the moment we left he had a huge grin.  We could just feel his excitement.  That was when Mike and I really started wondering how we could make this happen for him.  We knew the noise and the crowd would be our biggest issues.  Hayden hates loud noises and big crowds. We knew the only way that he could enjoy a race would be in a suite.  Then we started discussing  the cost of making that happen.  We knew there would be no other way so we made the commitment and started praying he would enjoy himself.  That he would make it through the whole race and that we would not regret it.  We knew we had to try at least once and if he didn't enjoy himself well then we didn't have to do it again.  So on the weekend of April 13th we took off on the 5 hour drive to Dallas.  Because of traffic we basically had to head straight to the track on Friday.  He Because of one amazing grandma and ton of awesome family, friends and strangers Hayden was going to meet his favorite driver Juan Pablo Montoya (JPM).  So we waited about a half hour for him to ride up on a golf cart and then I said a little prayer "lord, please let Hayden recognize and be excited to see him".  He knew who he was from a distance and the amazement on Hayden's face was worth more than we paid for our entire weekend.   JPM got on his knees and said hello and talked with Hayden for a few minutes, we took pictures and then JPM presented Hayden with a bag of goodies.  At about this time a crowd began to gather so Hayden got very hyperaroused and panicked.  JPM looked at the crowd and said "You need to all back up and wait until I am done with this little boy".  He at that moment in my eyes became the most amazing sports guy ever!!!  I have to say the crowd was awesome too.  They all backed up and one guy even offered to take the stuff Mike was holding so that Mike could take care of Hayden.  Really says a lot about NASCAR drivers and fans.


Hayden Meeting his favorite Driver


This was JPM telling the other fans to back up!


Now I know you are all wondering if Hayden enjoyed his first NASCAR race.  Well I will let you be the judge of that.


In case this video was not enough to convince you and you have a little more time watch this one.


Mike said Hayden was like this for three hours straight!  Didn't even want to get out of his seat to eat!  When he walked into the hotel room after the race he still had a huge smile on his face. He started telling me all about the race and the pits.  So Yep it was WORTH EVERY PENNY.  The boys are already trying to figure out what track they will be visiting next year.

Again I send you all a heartfelt thank you for sharing the Facebook page or saying a pray.  We are so blessed to have such amazing family and friends in our lives.  To those of you who had never heard of Hayden or Fragile X, I am so thankful that you took the time to find out and help us out.  There is so much negative in the world it is so nice to know that there are people who still care.  People who have no idea who my little boy is stopped to take a minute and help him meet his favorite driver.  That is just amazing to me.  Because of all of you, Hayden got to meet his favorite driver and Mike and I were able witness our little boys dream come true.  To think I wasn't even going to go.  Geesh what was I thinking. 

Not sure if he will ever see this but, Juan Pablo Montoya you are a class act.  From the bottom of our hearts thank you for taking time out your schedule and for being such a nice guy.  To Earnhardt Ganassi Racing and Shayna Keller I cannot thank you enough for everything.  I know that there are so many more people to thank and we will never truly know how many people had a hand in this, please know that we will forever be grateful. 

Love,
Tina 

Friday, April 6, 2012

Try and keep up

Well a lot has happened since Hayden's birthday...try and keep up:

Hayden: The drug trial is going really well. They are seeing some big changes at school. We are seeing some changes at home. He is able to answer almost any question you ask him with an appropriate answer...HUGE!! Sometimes he needs a little prompting but for the most part he answers me. He. answers. me. Yay!!! We are holding steady at a pretty low dose. We tried to up the dose and that was not fun. My fun loving, easy going little man was anything but. So back down we went. One more exciting piece of information I think I can safely say Hayden will be meeting Juan Pablo Montoya!! Thank you to his Nannie for getting the ball rolling. Thank you to all of you who liked and shared the page. I really, really hope he gets to see the car!! Our people (daddy) got a call from his people (the PR department) saying that we are to meet them at the tunnel friday night. We really have no idea what is going to happen but we are hoping for something big. I cannot wait to see Hayden's face light up when we get to the track. If it's anything like it was in Vegas with no actual race cars we are going to need some tissues. Mike and I have already decided we are going to have to wear our sunglasses the whole time so nobody knows we are crying like babies.



We have a new cupcake - a pink one!! Wow is a pink cupcake different from a blue one. She is two and half and girlie, girlie, girlie. She likes dresses, and purses and her hair done and shoes. This little cupcake comes with a lot less risk than our last cupcake. There is still a small chance we won't get to keep her but it is a pretty small chance and we should find out sometime this summer. She has been through a pretty rough few years so we really hope we can keep her and make her feel safe and loved forever. She is so easy going and loveable. She fits right in!! She has a lot of sleeping issues that we need to work through right now. Please say a prayer for her that all of these go away and she can have peaceful nights.



So tomorrow we pack up and head out on another road trip. Thank goodness this one is only 5 hours. Meeting Juan Pablo Montoya on Friday, Hayden and Mike go to the race on Saturday while cupcake and I try to amuse ourselves in the hotel room. Then back home on Sunday. Hoping to get a little Greek Easter celebrating in. Since I did not go shopping for the proper Greek Easter dinner we will more than likely be eating take out. Maybe we can hit a Greek restaurant on the way home. "What do you mean you don't eat meat?" "Don't worry I make lamb". That was one of the only lines from My big fat Greek wedding I remember.

Oh one more piece of info.....I did it...we are now officially Texans. I took the kids pictures in the bluebonnets. I really wish I could post a picture of both of them because they came out so cute. This one of just Hayden will have to do. By the way he did not think posing in bluebonnets was manly at all! He had the "are you kidding me" look on his face the whole time.

Ok, so those of you who read my blog know how crazy this is to me. How people pull off to the side of the road and walk through who know what to get pictures in the bluebonnets. I totally cheated. Yep cause it would be my luck for one of my children to get attacked by fire ants or bit by a rattle snake. So yes I completely cheated. This particular patch of bluebonnets is in the parking lot at Hayden's school. Yep all nicely mowed around it. I completely searched the area for bugs and put down a blanket for the kids to sit on. Yep I am a yankee and my children were not harmed in taking of these pictures.


Stay tuned for updates from this weekend!

Love,
Tina

Saturday, March 17, 2012

Dear Hayden Michael



Dear Hayden Michael on your 7th Birthday

Seven years ago you made me what I always wanted to be, a mommy. March 18th, 2005 was the best day of my life. I didn't know at the time but my pregnancy with you would be my last. I didn't know but many of those special moments would be my firsts and my lasts. I am so grateful that I cherished every moment of them. The first time you kicked me, I was trying to take a nap. The first time I got sick, I ate hot fries dipped in frosting. That one might have been my fault. The first time I heard your heart beat. The first time I saw your face on an ultrasound. Opening up that piece of paper that told us you were a boy. The first time I heard you cry. The When they placed you on my chest my whole life had new meaning. My life for the first time had a purpose and everything clicked into place.




Watching you grow and learn has been a pure joy. Every Milestone has been a triumph. You have made me a better person than I ever thought I could be. You have made me a better mommy than I ever dreamed of being. You bring the sun through the rain. You bring laughter through the tears. You bring the dreams through the hopelessness.

I only hope I can be half of what you think I am. The unending love you have for me brings me to my knees. The trust you show me humbles me. Thank you for being the most amazing boy a mommy could ever ask for.

Please know that I will screw up it's what mommy's sometimes do. I promise to always love you unconditionally and always believe in what you can do and never underestimate all that you will become.



Love,
Your mommy

Thursday, March 15, 2012

Off And Running!!!!

Well today is day number 1 for Hayden on the STX-209 open label medication. We're off and running. We are so excited and so scared. I keep telling myself not to expect too much. Then I hear the stories of the kids who are on it and think Wow just Wow. Kids who were not speaking a word and are now speaking in sentences. A boy with so much social anxiety he couldn't talk to his peers at all just asked a girl to the prom!! Because. of. this. medication. How darn exciting is that. Now Hayden is on it and the sky is the limit. Yep I am going to expect too much but what an amazing feeling to have something tangible to reach for. I cannot wait to see what this does for Hayden. Not that he could be more awesome but wow I can't wait for his awesomeness to grow.

Our foster care situation has been dramaless. Which has kind of been nice. It's been slow and I'm getting very few calls. I don't know why it's slowed down and I haven't asked...yet.

Saturday is Hayden's birthday party. My baby is going to seven...SEVEN! Wow when did this happen? I thought I would try something a little different this year. I decided to ask Hayden for input on his party. It is his birthday after all. Imagine how surprised I was when he knew exactly what he wanted. EXACTLY. I can barely get him to tell me what he wants for breakfast let alone everything he wants at his birthday party. So this could mean one of two things. A) he is really starting to care about stuff like this -or- B) He thinks I stink at party planning. I'm going with (A). I would like to ask that everyone coming on Saturday keep in mind this entire party was planned by a SEVEN year old, right down to the kind of ice cream being served.


I had to pull out a pic of Hayden at four because I couldn't remember what his birthday theme was. It was bugs for anyone who might be wondering. I will say I made the cutest darn bug cupcakes. See cute right?



Public Service announcement:
I was standing in line at Target the other day and had a complete internal battle with myself. Please note that I said internal. The battle was about at what age is too old to have a word on the butt of your pants. I'm not taking about the name of your jeans but a full blown word. I have figured out the answer because I am a complete and utter genius. You are too old to have a word on you butt when the first thought in your mind after reading the word on someone else's butt is: "sister if your butt is juicy you need to seek medical attention cause that just aint right to have a juicy butt" Since this was my first thought I guess I am too old to have words on my butt. Besides what would my pants say: "Hey I like cupcakes don't judge" and that's just too much to have printed on a pair of pants anyway.

Love,
Tina

Monday, March 5, 2012

Advocacy and Stupidity

March wow it's here already. March has always been one of our busiest months. Those of you who follow my blog regularly know that not only is March Hayden's birthday month but its also the month that we recognize Fragile X Advocacy Day and Spread the word to end the Word day.
So on the same day, March 7th, we advocate for Fragile X and we advocate against stupidity.

Fragile X Advocacy Day: March 7th
On this day 150 Fragile X advocates from all around the country are meeting with Congress to help secure funding, advance research, and spread the word about Fragile X Syndrome. Mike is one of those advocates again this year. I think this makes 3 years in a row that he has traveled to D.C. with our fragile X family to advocate for our little man and many others just like him. I cannot tell you how proud I am to be his wife. I cannot tell you how awesome it is to be part of this amazing and supportive FX family. How cool it is to think that today in Washington D.C. our stories will be heard, our pictures will be seen, our letters will be delivered. Our representatives will see a picture of Hayden and our family. How cool is that? How great is it that these amazing advocates spend their own time and money to make sure our voices are heard. From the bottom of my heart I thank each and everyone of you for being such amazing people.

Spread the word to end the word day: March 7th
Some day I hope that we will live in a society that no longer needs a day like this. Someday I hope everyone realizes that when you say something is "retarded" no matter how you are using it, it's painful to someone. I don't like it when it's used as a medical term. I don't like it when it's used to create awareness and I especially don't like it when its used as slang. I signed a petition years ago to never use it and to call people out when I heard it. I NEVER use it and you most definitely would never hear me use it to describe Hayden in any way. Not to create awareness and not to describe his disability. Stop using it! Because what you are are loosely referring to as retarded will never come close to what my little boy is. It will never describe the goodness that radiates from him. I am thrilled to say that our school district no longer uses the term. For the first IEP in two years I did not have to hear the word uttered once. I did not have to ask them to not say it. I cannot tell you how awesome it was. I want to say thank you to our family and friends who no longer use the word around us. I REALLY want to say thank you to our family and friends who have stopped using the word all together. It means an awful lot to our family to be respected in this way. Those of you out there that continue to use it as slang; grow up and STOP. Show some respect for the people around you. If you need a list of other words you could insert in place of it let me know. I will be happy to send you one.

Happy Fragile X Advocacy Day,
Tina and Hayden


Tuesday, February 28, 2012

How do you know when....

How do you know when it time to limit the electronic time in your house? Let me just help you all with that...It's time to limit the electronic use in your house when this happens:

Hayden from the upstairs bathroom is screaming "mommy, MOOOOOMMMMM, Mommmmmy,". I because I am a rock star super mom, drop what I am doing (making an apple pie) and go running up the stairs to see what is about to eat or kill my child. He then looks down at his pants and underwear around his ankles and says "put pants up please". Now why could the boy not pull up his own pants and underwear you might ask....Let me just tell you, he did not want to put down the ipad. Yep the boy did not want to put DOWN the ipad!!!! Whats worse is I actually pulled up his pants. HELLLOO rock star super mom what were you thinking?? Um, hello he said please. Okay so I wasn't making an apple pie but the rest of the story is true.

Sooo it's time we start limiting the electronic use in the Makris household.

It's not gonna be easy. Look at that face!!!

How do you know when you need a break? I mean a real break...not the go to the grocery store or go by yourself to the doctor kind of break, but a real break? The kind of break where you know if you don't get away soon for a decent amount of time you are going to have a nervous breakdown break? You need that kind of break when this happens....

You have just found out for the fourth time in one month that you are not going to get a baby they matched you with. You then find yourself talking to yourself in the mirror and you actually answer yourself. When you actually tell you that you are wrong and that you don't deserve what you are asking for. Then you start plotting with yourself elaborate schemes to get what you want. Even the me responding at some point thought I was nuts. I'll admit that I tend to talk to myself often but this still freaks me out a bit. Desperation and stress make you think and do weird things.

How do you know that you have married the right man? You know you have married the right man when this happens...

You are cooking burger and bashing it like a lunatic while sobbing and repeating the phrase "I don't think I can do this any more", over and over again. First you think why is he not hugging me? Why is not coming close to me. Who wouldn't want to hug a sobbing meat bashing woman? Really, I do not understand men. Then after you have successfully killed the cow for the second time, you turn around, look at him and say "what are you thinking?" He then says one phrase, just one sentence "maybe God is not ready for us to take care of another baby until we take care of ourselves". Your first instinct is to bash him over and over again with your meat basher. Then in that next second you realize he is absolutely right (hate it when that happens) and you really needed to hear what he has just said. You needed that wake up call, for once you needed to hear that more than you needed a hug. FYI I do have a meat basher it is really awesome got it from pampered chef...I'm pretty sure that's what its called too ;)

Yeah I think I married the right man...

I do not recommend the second two scenarios in the same day. That is just too much realization for one day. I like my ah ha moments to be a little spaced out thank you very much!

Sooo what are we doing about all this realization that is taking place in the Makris household? The first situation happend today so I will wean the boy slowing off the addicting Ipad. As for the last two I went to Michigan by myself for my birthday and took that much needed break. I stayed up late, slept in late, ate seriously good food and had a bunch of much needed family and friend time. I got time with my niece and nephew and didn't have to share them with anybody! The last situation well I can honestly say I am taking care of myself and my family. I am exercising, staying positive, organizing and actually cooking again. Go me I'm a rock star super mom. Hey, Where did I put that cape?

Love you all,
Tina