I've created this blog to share our experiences, struggles, and triumphs with Fragile X Syndrome. My son Hayden was diagnosed with Fragile X in October 2007. Since that time our lives have been completely changed. What we thought was normal and what we thought our life would be is nothing like what it actually is or what it will become.
What we have learned though in the past few months since D-Day "diagnosis day" is that our lives have not come to an end - but yet have only begun. Each new day brings it's own set of struggles and challenges - yet each new day also brings the joy, excitement, happiness, and the true blessing from God of being parents to in our eyes the most wonderful and special child in the world.
It is a struggle, but each day we move forward - each day is better than the previous and each day is to be cherished to its utmost potential. In the past few years - and especially the last 12 months - I have learned that nothing is to be taken for granted because it can all change without your approval. As I write this first post I make a personal commitment to live each day to the fullest and to move forward when life knocks you back.